Hello again!

Well, it's been a long time since I last posted here. I guess with Christmas and not a huge amount happening with my legs I didn't think there was that much to show or tell you.

But I have recently visited the good Professor Schmeller at The Hanse Klinik in Lubeck for a check up and am really pleased to report that he is as happy with my result as I am!

My long suffering husband ;0) joined me on a long weekend trip to visit the Klinik and come home with some very happy memories of Lubeck rather than it just be the place where I had my legs cut open! See how beautiful it is!

So we met with the Professor after walking around Lubeck for about 3 hours, my legs weren't possibly in the best shape they could have been. They are always the best in the morning after a good nights rest.

He asked how I'd been, any problems, & discussed the outcome. Was I happy? Yep, you betcha! And was happy too. He said that given the amount of weight I had lost & along with my age (an aging 45), this was the best possible result I could have achieved. He suggested new compression stockings for me, level II as I was still (and am) wearing the compression stockings from the surgery.

He measured me again, and there was at least a 5cm reduction at every level. The only part he said he was disappointed with was above my knees where he had removed the fat but the skin was drooping. I know that I need a skin tightening procedure on my thighs and this part was to just ease the joint around my knee.

So here is a 'before' photo...

And here are some afters.....

The Professor said I would continue to see improvement in the lower calf to ankle area where there is still scar tissue, and this could take another 6-12 months. I will see a reduction in the swelling too, which would be great.

I have lots more pictures which are more of the same and I'm more than happy to share.

I'm also happy to report I'm sleeping better now as my legs have calmed down. This makes me a happy bunny also :0)

They're alive!!

yes, my legs are alive!

Sounds obvious doesn't it, but let me explain some more! Since the surgery my legs have been pretty numb around the shin and ankle area and up by my knees. This is obviously where the cannulla went into my skin and really took the brunt of the lipo.

But now the healing process has got the point were the nerves are all coming back to life, which is a good thing! It's not painful, just a bit strange. Before I just had this odd feeling, a bit like someone was trying to brush my hair backwards and little electric shocks occasionally. Now they just feel a bit achy, especially at night. I assume that's more to do with relaxing and being more aware of what's happening in my body than at any other time. The annoying thing is I keep waking myself up by knocking my legs as I turn over in the night. Again, it's not painful, just that I am more self aware.

Other than that I am still wearing the compression stockings every day. My legs seem to want to swell if they are down for too long, as because life has to go on, my legs do need to be down occasionally! I think they'll be on until after Christmas and then I'm going to try and slowly wean myself off them :0)

My husband & I were having breakfast the other day, sitting on the sofa with our porridge and tea and he says to me 'The Professor did a really good job'...he'd been admiring my legs. How lovely for him to essentially say that my legs are looking good!

Was it worth the money? yes! Was it worth the pain & hassle? yes! Would I recommend anyone having it done? yes! Will it change your life? yes! Would I go through it again? Yes, although I wouldn't really want to if I didn't have too.

The good, the bad & the apology...

Ok, so a funny titled post but it's been a funny sort of couple of days. Let's start with the apology & get it out of the way...

I don't normally ask people on the internet to give me their addresses & if anyone asked me I probably wouldn't tell them! But something has happened to me in these last few weeks and I feel changed, in a very special way. I think I've mentioned it before, like finding God, that I have this need to help & be kind to people randomly that I've never had before.

I had massage this afternoon and my therapist said it was all to do with feeling vulnerable and recognising that in others. It's a bit like people have been so kind to me and I just want to give something back, even if it's just in a small way.

So I'm sorry if I've offended anyone by asking for a certain lady's address, it was done with the best of intentions and a couple of hours later (in the bath) it hit me that weirdos do what I've done. I run a small business, I'm a nice person & I felt very sorry at that moment for that certain lady. I thought I could make her smile with a small act of kindness. I stand by that. If it compromises my integrity or my standing in the Lipedema Sister group, then so be it. Also, I'm open to being mugged off myself at the moment, for example, I could get one of those scam emails which asks for my bank details to give me $5,000,000....I'm likely to say, hell, yeah, I trust you! ;0)

And the bad...well my poor leggies have been quite sore this week. I make glass jewellery as a hobby which I sell and I spent saturday at a craft fayre, sitting for the most but feet were down. Then we went to the opera (Tosca...was amazing!) again legs down & on Sunday we walked around a Christmas market in Salisbury. All lovely things but my legs were not happy. Swollen and fizzing like crazy. I emailed the Professor and he said my poor legs were still healing inside and I should continue to wear the compression. He said it could take a number of weeks before they stop swelling. It's 4 litres of fat they took, lots of irritated flesh still not very happy with me.

And saving the best for last, the good! I have seen amazing improvements in my mobility & balance! My balance has always been exceptionally poor. I can be standing somewhere and for no reason, I topple to one side. Makes me look drunk! But this seems to have stopped! Hooray! Also, when I squat at the gym I can go reallllllly low, the knee joint is so much free-er which a better range of motion. Nothing proved this more than getting out of the bath like regular people. I used to have to flip over onto my front. And finally, I actually saw my calf muscle. Again in the bath, I had my leg to one side and as I flexed my foot, there the little devil was! And with an actual line down one leg moving! I was transfixed! Little magical miracles.

Doing too much.....AGAIN!

Well yesterday was a very exciting but scary day for me.

I was going back to my beloved gym and to my trainer Kane after 3 weeks of doing nothing. It's hard to do nothing when you're used to doing quite a lot! This comes after doing next to nothing for most of my life.

Last year I ran (well, ran and walked a fair bit) a 10k (6 miles) for the first time ever. I was dressed up as Santa, along with about 2000 other Santa's. Some people were doing a 5km but Kane & I decided we should go for it. I trained quite hard for it and on the big day, more and more people passed me, but I did cross the finish line. I actually came officially last....yep, not something you'd normally be proud of, but I actually finished! Other people dropped out, so technically, I guess I wasn't really last (you keep telling yourself that love, lol!)

Here I am crossing the line, amazed at what I had achieved!

So yesterday was supposed to be a good day. My legs were looking good, I was feeling good. I walked around the lake at work as a warm up. Took me 40 minutes to do a 2.2km walk which would normally take me about 25-27 minutes, but that was ok. At the end legs were good to go!

At the gym we worked fairly hard on some weights on the upper body, and a fair bit of stretching. Nothing overly challenging and again I felt no pain, and felt good. At no point did my body say 'OWWW!' to me.

Driving home after about 10 minutes of the 20 minuite journey I started to feel very strange. I could tell I wasn't concentrating and I felt I was just looking at other things, other than the road! As I drive through a fairly rural area it didn't feel safe to just stop. So stupidly I just kept going. I was like one of those cray people staring out of the car window, hands gripped on the wheel, willing myself to get home.

Once home I started to cook dinner, pasta with bolognaise sauce, how difficult is that to make? Quite when you feel completely spaced out and feel disconnected! My husband came in about 5 mins later and said 'are you ok', 'no, you're going to need to finish this'. I sat down and then the shakes hit me with a sick feeling. Very very scary!

I forced myself to eat and then we just sat there. I looked 'monged out' but I was experiencing what I believe to be a low sugar moment, hypoglycemia. After about an hour I started to feel better. And tiredness hit me. I felt very emotional and felt very silly about 'doing too much'. I went to bed and more waves of tiredness hit me.

I feel perfect today. Nothing hanging over from yesterdays problem. I've bought some glucose sweets to keep in my bag in case it ever happens again. And yes, I am going back to the gym on Thursday, but have told my trainer we've got to take it down a notch.

And everyone was right about doing too much!

Gory Photo Time!

So here are the photos taken after my surgery...finally I hear you shout!!

This is me literally moments after the surgery. I'm laying on the surgery bed and the Professor says 'smile' and I did! The other picture is of the fat they took from my legs, all 4 litres of it! The red fluid below isn't blood, but fluid with a few drops of blood in.

These photos were taken the day after surgery and before flying home. I remember being quite shocked by my legs but putting a brave face on. I was thinking oh god, what if it stays like this? I had been warned by the Professor that there was a chance that may happen but thankfully, the skin has retracted bag. I guess at this point it was like emptying a plastic bag and expecting it to just bounce back!

Getting Diagnosed.....

I was always a big child from a family of relatively slim people. I was a little greedy perhaps, but no more than any other child. I remember being called 'tree trunk legs' by a horrible boy when I was about 11, he was pretty spot on.

I was diagnosed with lipo-lymphedema (I'm from the UK so we spell it a little different) in Sept 2011 by Professor Peter Mortimer, the leading UK specialist. I had paid for a private appointment after spending the previous year on a new diet and fitness program & working with a hypnotherapist. Part of her work included dealing with food issues and triggers, and some counseling. She was upset to see me so incredibly happy in my life, except where it came to my legs. I had spent many an appointment in tears over my legs, feeling like I looked a freak, re-living hurtful remarks made by people including my family. I said I was sure I knew what I had so she pressed me to get some help and found a MLD therapist for me in my local area.

I went to see Lucinda Careswell and she immediately confirmed I had lipo-lymphedema. She initially started a program of MLD and we then went on to a week of bandaging. Boy, that was painful! It felt as if my skin was going to fall off & I was exhausted because I wasn’t sleeping! But at the end of the week I could see a real difference. I continued with MLD on a weekly basis. My big & hard legs were softening up and I stopped feeling that completely stretched, ‘oh my God, my skin is going to split’ feeling quite so often. My mother even sent me a clipping from a national newspaper who did a double page spread on lymphedema, as if it wasn’t something I’d been telling her about for such a long time. Maybe she finally understood?

I then decided to make an appointment with Peter Mortinmer to see if I could get a diagnosis and see what sort of help I could reasonably get. I was amazed how easy it was for me to just book it! After making the appointment I was quite scared. What if I wasn’t ‘ill’ and if I was just fat? How ridiculous would I look then!? But when they day came and I went to the appointment within 10 mins or so of an examination and a brief bit of family history Professor Mortimer confirmed my diagnosis of lipo-lymphedema of my thighs and my calves area.At this point I had lost about 4 stones in weight. He advised me to be careful about losing too much weight as it was important to keep a balance between the top half and the bottom. No other medical professional has ever said, ‘don’t lose weight!’ before. It was such a freeing experience to actually know that it wasn’t my fault. I felt as if a weight had been lifted off my shoulders.

Some years previously I had been to see my Drs because I was worried about my legs. They didn’t seem to be the right shape especially for an overweight person. Obese people do not have fat calves! Various doctors in the surgery prodded and poked my legs and had no idea but one Dr did a bit of research & booked an appointment for me to see a lymphedema specialist at Guys & St Thomas’s Hospital in London.

At the appointment the Consultant said that even though I had pitting he didn’t think I had lymphedema. He said he heard of some research happening at St George’s Hospital in Tooting about a genetic fat problem but personally he didn’t believe in it. When I said that I had problems losing weight he said that he was sure that if I’d been in a concentration camp in the war then I’d have no trouble losing it! How ignorant! How rude! How disrespectful!

I made a formal complaint about him and I did get some sort of apology from the NHS who said that his comments had been taken out of context. Disgraceful is what I call it! Professor Mortimer knew exactly who this man was. Other ladies had encountered him and similar nasty comments had been made to them. I’m sure what sort of person who is supposed to be in the caring & healing community could make those types of remarks, and no doubt worse.

Doing "too much"?

How exactly do you know you're 'doing too much'? I'm constantly being warned about this and what does it mean?

It seems rather natural to me that if I can walk or dance, or jump and it doesn't hurt in any way, then it should all be ok....but actually that seems not to be the case.

On sunday, the day before returning to work, and feeling well, painfree and ready to get a little fresh air my lovely husband & I took a drive to our local DIY centre to get something for me to rest my legs on under my desk at work.

We parked a little way away from other cars so I could open the door fully to help me get in and out. So basically I did a 3 min walk to the shop, a 15 min walk around the shop and then back out to the car....

When we got home, feeling well, I sat at the table for a couple of hours doing some crafts. Just sitting, but not with my feet up! This is 'doing too much'!!!

My poor knees swelled like balloons and my right ankle puffed right up. I was really not very happy about it at all. My knees also really ached, especially the left one. I was cross with myself for 'doing too much' but also because it didn't seem that much to do. I'm not sure if it was the walk or the sitting part.

So I am back to work, walking from the car park which takes just a couple of minutes with my feet up nearly all day.My ankles and knees are just fine. But my backside really aches!!